Recently, the medical treatment market that 14.48 million yuan of medicaments make a kind of price domestic and international " scamper boiler " , poor people began pair of this medicine companies " condemn both in speech and writing " , think such price is to help a person far from, the life that uses the child however coerces the parent, beg ransom.
According to the report, this medicaments is called " Zolgensma " , belong to sex of children spinal cord sweeny gene therapy, via American FDA approval, had appeared on the market in the beauty at present.
This medicaments plain code marks a price 2.1 million dollar (about 14.48 million yuan) , it is current till history go up the most expensive drug.
Graph source: Video of pear of @ of video check scheme
CEO of this medicine company expresses, look this to raise medicine very expensive, but with other treatment methodological photograph is compared, valence does not consider the medicine of 2.1 million expensive.
"We become transplanting operation to the patient, every patient should be spent 3 million to 5 million dollar, far outclass the price of this money medicaments, the effect is far however be inferior to this medicaments. The effect is far however be inferior to this medicaments..Graph source: Video of pear of @ of video check scheme
At the same time this company CEO says, this therapeutics needs to undertake only, treat a need that is to say a medicine, consider come down to had compared other treatment pattern cheap.
Graph source: Video of pear of @ of video check scheme
On the other hand, this medicine is protected in cure cover range inside, resemble loan same, insurance company can be inside 5 years instalment.
Graph source: Video of pear of @ of video check scheme
Not only pharmacy company thinks this price is not expensive, a few supervisory organizations and patient also think not expensive.
Recently, some supervisory organization gives out judgement, say: In view of the latent capacity of this kind of medicaments, its price is fair.
Graph source: Video of pear of @ of video check scheme
The parent of children of the heal after adopting this therapy also stands to express: Having cured hope is important, life cannot be measured with money.
Graph source: Video of pear of @ of video check scheme
Supervisory orgnaization and cure the parent to stand to be medical company conversation in succession, but appear and did not persuade the impoverished family that gives Qian Laizhi cure people.
Most person thinks, life does not have valence admittedly, but such price, it is clearly " coerce with the life " , it is the nature of the businessman that pursue interest.
The little brother gets this disease to go namely, the doctor says he can live to be 15 years old had been a miracle, the year before last year does not have any medical treatment methods, although there was remedial method now, but I think Everyman of need of this kind of method is broken all things of a family. Likelihood this is a life, this kind of medicines and chemical reagents just also is classy person to make.Do not eat to be not drunk all one's life, I also am canned not afford
The disease that treats the hardest is poor disease
This drug is used to wealthy person, the poor did not think
Still another part person expresses to approve the price of medical company, they think everything needs cost, especially medicaments research and development, medicaments research and development is not to become charity, without gain, be willing without the orgnaization not plan of cost go new pharmaceuticals of research and development, for this pair of mankinds, not be a favour.
The cost of research and development of medicines and chemical reagents is very tall, cannot grind every time sometimes give out a kind of new drug. Only the patient buys sheet for original medicines and chemical reagents, ability drives more scientists to install a person's mind to go medicines and chemical reagents of research and development.In the conflict of each netizen, we saw two the mainest dispute nod:
Too expensive, the poor is treated do not rise.
Too cheap, medical company research and development does not rise.
It is before whether discussion drug price is reasonable, we understand amyotrophy of sex of this so called spinal cord first what is disease after all?
Amyotrophy of spinal cord sex (SMA) say to undertake amyotrophy of sex of sexual spinal cord again amyotrophy of disease, backbone disease, be a kind by the horn before spinal cord motorial yuan with the head denaturation of dry motorial nucleus brings about flesh the disease of faint, amyotrophy.
It is one of diseases of the commonnest muscle of deadly sex nerve, belong to euchromosome recessive hereditary disease, clinical not scarce.
This disease is called the " of number one killer of " infant hereditary disease.
Graph source: Evolving-science
According to estimation, SMA incidence of a disease is 1/6000~1/10000, that is to say every 10000 new students in one person suffers this effect, among them the sicken baby of 90% does not pass 2 years old alive.
The basis comes on the age and flesh are faint and serious degree, SMA is clinical the Ⅰ that be by cent, Ⅱ , Ⅲ , namely baby, teenager reach among model.
Among them the SMA patient of about 60% is 1 model, this also is a kind of the most serious type.
Up to now SMA still does not have distinctive effective treatment, main remedy is precaution or the complication that treat all sorts of serious flesh to arise feebly, mix like obstacle of pneumonic, hidebound, skeletal deformation, action mental sociality problem. (above content is arranged from Baidu 100 divisions)
Until in recent years gene therapy technology develops progress, this kind of disease just began to have a hope.
Graph source: Google
To nowadays the medical price of 2.1 million dollar, everybody feels too too costly, but look in pharmacy company, this has been " the price after compromise " .
" we had undertaken study, the price is in 4 million to 5 million dollar, ability keeps cost quite. " -- David Lennon of president of the AveXis below Nuo China banner.Answer the tremendous controversy nowadays to nod -- medical price.
Actually nowadays the conflict on the net is not medical price it is too expensive issue, however whether can everybody accept this drug price.
A medicine 2.1 million dollar, add up to 14.48 million RMB about, do you say expensive?
Expensive of course, this medicine already is enough in Beijing is flatlet bought outside 3 annulus is?
But, is it so expensive? Perhaps say, is it OK so expensive?
To the poor, it not not should OK also so expensive.
Such high drug price was to give everybody a hope undoubtedly, gift afresh again acedia --
"I have drug, but your cure does not rise. But your cure does not rise..
This is one kind is compared " incurable disease itself is terrible still " acedia.
Stem from seek to live on desire, stem from reality to think, those who stem from pair of poverty is helpless with compromise, so they " hate " pharmacy company, think they not should such " unnatural " , " not consider life of one mind to pursue interest " . . . . . .
Are they wrong?
Appear to also be done not have, they are only a flock of getting " poor disease " helpless person stopped.
But is pharmacy company wrong?
Go up at every turn the cost of research and development of 100 million,
Countless manpower, material resources, financial capacity,
Throw many time research and development,
Had this to be able to cure SMA eventually " divine medicine " ,
Do they need to call in cost?
Pharmacy company is not beneficent orgnaization, this word listens suddenly go up very chill, very actual however.
Pharmacy company is not beneficent orgnaization of course, they should have capital to just can continue new drug of research and development, promotion treats the effect;
Want to gain just can have more people to enter pharmacy industry, bring a hope for more diseases;
Had new drug, incurable disease patients just are met hopeful.
In the film " I am not medical god " in, we saw a miracle, "Cheap and fine " India is modelled on be modelled on " Glenn is defended " let those wardmate people the possibility that had subsist.
But, the expensive drug that if passes old research and development without true classics " Glenn is defended " come out, after where having again countless people full name saves " be modelled on is Glenn defended " ?
We cannot be given out " why to eat the meat rotten " interrogative, also be in company of pharmacy of the requirement on moral level without footing " kind-hearted " , " altruistic " ,
We also can be helpless only stopped. . .
